Billy Caldwell: Mum of severely epileptic boy says 'let me treat son at home' as she calls for medical cannabis reform

Charlotte Caldwell and her son Billy outside the Home Office last week
PA
Ella Wills17 June 2018

The mother of a severely epileptic boy has called for a meeting with the Home Secretary to discuss re-thinking "massively outdated" laws on medical marijuana so other children can receive treatment.

Charlotte Caldwell also said on Sunday she wanted them to assure her she would not face "another battle" for 12-year-old Billy when the 20-day supply returned by the Home Office runs out.

Ms Caldwell uses the oil as his anti-seizure medication and she wants to be able to treat him with it at home, the BBC reported.

The Government's initial refusal, and then its change in stance, has prompted renewed debate on legislation, with a Conservative MP who leads a drug policy parliamentary group saying existing laws are "frankly absurd".

Ms Caldwell has called for a meeting with the Home Secretary to change the law
REUTERS

The boy is being treated at Chelsea and Westminster Hospital in London.

Ms Caldwell, 50, said: "I want nobody in Government, and nobody who has been impacted by massively outdated laws, to be under any impression that this is job done. This is just the start.

"I want to meet the Home Secretary and Health Secretary (Jeremy Hunt), urgently, this week, to get assurance that not only will Billy's meds never again be removed, but to call for an urgent review of the overall policy on medical cannabis as it affects everyone who could benefit."

Ms Caldwell, of Castlederg in Co Tyrone, Northern Ireland, had seven bottles confiscated at Heathrow Airport customs on June 11 after she brought them in from Toronto.

The emergency measure allowed for one to be returned and Ms Caldwell reported an improvement in her son's condition after taking the drug, but when this runs out a new application will have to be made for a licence.

"He has 20 days worth of anti-epileptic seizure drugs. What happens after that? Another battle?" Ms Caldwell said.

Many other countries, including much of the US, Germany, Italy and the Netherlands, have legalised the substance's use medicinally.

But the UK has not, leading Ms Caldwell to claim Britain is "stuck in the 1970s" in its attitude to drug policy.

Ms Caldwell credits the oil with keeping the boy's seizures at bay, saying he was seizure-free for more than 300 days while using it, but it contains tetrahydrocannabinol (THC), which is restricted in the UK.

Crispin Blunt, an MP who co-chairs an all-parliamentary group on drug policy reform, has described the current stance on marijuana's medicinal properties as "crazy".

"We need to get serious now about getting the benefits of these medicines, and move to change the frankly absurd position we are in," he said, according to the BBC.

Former drugs minister Norman Baker has described the confiscation as "cruel and inhumane", and renewed calls for a law change.

"It became very clear to me in my time as drugs minister that cannabis has useful medical properties and, indeed, that it is the only substance that works for some people, a situation widely recognised in other countries," the Liberal Democrat said.

The child, from Castlederg in Co Tyrone, started the treatment in 2016 in the US, where medical marijuana is legal.

He became the first person in the UK to receive a prescription after his local GP in Northern Ireland, Brendan O'Hare, began writing scripts.

However, there is no record of a health service prescription being dispensed.

Additional reporting by Press Association.

Create a FREE account to continue reading

eros

Registration is a free and easy way to support our journalism.

Join our community where you can: comment on stories; sign up to newsletters; enter competitions and access content on our app.

Your email address

Must be at least 6 characters, include an upper and lower case character and a number

You must be at least 18 years old to create an account

* Required fields

Already have an account? SIGN IN

By clicking Create Account you confirm that your data has been entered correctly and you have read and agree to our Terms of use , Cookie policy and Privacy policy .

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.

Thank you for registering

Please refresh the page or navigate to another page on the site to be automatically logged in

MORE ABOUT